I
was wheeled to surgery & my friends escorted to the waiting
room where they waited over 5 hours while I was under knife, saw,
drill & whatever else it takes to cut through & open a person's
scalp & skull. (reminds me of a favorite
'Sonic
Youth' track "Expressway
To Your Skull"). I'm told that the waiting room
became quite the weird scene with Megan crying hysterically at times
& my friend Billy & his bandmates sitting on the floor passing
a bottle around to drink their way through it. When my dad showed
up he had a drink with them. I'm sure he needed a one after 4 hours
of driving with the words "he probably will not survive"
in his head. So pop, & a bunch of my friends sat around sharing
stories, some from my friends that I'm sure I wouldn't have wanted
my dad to hear & vice-versa. It's been funny & heart warming
hearing about those conversations.. And so.. the night passed.
In the early morning hours a doctor took my dad aside to tell him
the situation. My dad told everyone that I had survived the surgery
& was being taken to the ICU.
My father was allowed to see me. He told everyone I
was alive, but unconscious, & there was a strong possibility
I would be comatose forever.
The next morning, my family & Holly returned &
were greeted with the news that I was already awake & talking
(never could keep my mouth shut). They were also told that I was
trying to get up & go home… (A good sign.) I had to be
strapped to the bed because when I woke up I pulled my breathing
tube & I.V.’s out. Here's why I did that..
I remember being in a semi-conscious state & hearing doctors
or nurses say that I might be a "lock in". I knew what
it meant to be a "lock in". A lock-in is when you are
conscious but blind, deaf, dumb & completely paralyzed. You're
awake but have no way of letting anyone know you are there. A presence
of fear gripped me and even seemed to torment me. I didn't know
then that this presence of fear was an entity that was going to
continue to haunt me & even try to convince me to take my own
life.
Back then as I absorbed the conversation
about being a "lock-in" Images from the scariest film
I had ever seen ("Johnny Got His Gun") raced through my
mind. I also remember psychically screaming lines from the Dr. Suess
book "Horton Hears a Who". I was screaming "I'm Here,
I'm Here, I'm Here" inside my head. I was the most terrified
in these moments than at any other time during my ordeal. At some
point the energy of my terror & what I call my "psychic
screaming" allowed me to punch my way out of my paralysis.
I then pulled my breathing tube out as well as everything else they
stuck in me. I'm told they then strapped me down to get all the
tubes back in. One of my biggest fears is being kept alive in a
hospital by machines. If my body cannot live on its own without
the assistance of machines, then let it die so my spirit can leave
this temporary shell.
I REFUSE TO BE PART OF A MACHINE ATTACHED TO THE HEALTH CARE INDUSTRY.
CONSIDER THAT AS PART OF MY LAST WILL & TESTAMENT. If you need
more info on this feeling, see the movie "Johnny Got His Gun".
I am not afraid to die. I am afraid to live under the power of machines.
If my body will not live under it's own power, then LET IT GO..
It goes to place far better than here.
This I now KNOW first hand. AND everything
we do here does matter in eternity, so do good knowing that all
your deeds will face you in eternity.. Your brain is your "black
box" flight recorder & is hooked into the universal neural
network. That's just a fraction of the wisdom I was given while
out of my body. I began writing the particulars of the visions &
data I received as soon as I could hold a pen but kept a lot of
what I experienced to myself. I told a few close friends & family
about my vision of earth dying of consumption & the "mission"
I felt I was sent back to earth for, but tried to keep silent about
that for fear it would arouse suspicions about my mental health
& keep me in hospital longer. I knew I had to get home ASAP
so that I could act on what I was shown while dead.
Holly said I spent the next several days asking where my car was
& plotting an escape.
One of My first post-op memories was hearing someone
asking me to wiggle my toes. Upon hearing that I knew I was screwed,
but I was able to move them. It was difficult & my fine motor
coordination was'nt there. However, I was not paralyzed. I was not
totally blind. I was not in a coma. My anger at the fact that my
head was cut open without my say so, that I was plotting an escape
& that I was pissed that I couldn’t get my usual raw-food
vegetarian cuisine was a sign that I was still me.
Divine intervention? And winding
up in the right hands.
Neuro surgeons are almost never in emergency rooms.
I wound up in one where not only was there a neuro surgeon, but
one of the best neuro surgeons in the southeast. Not only did my
surgeon (Dr. R.E. Rydell) know what to do & to do it fast, He
was also acquainted with the particulars of my extremely rare type
of affliction. The medical name for the type of aneurysm I had is
'arteriovenous malformation' or AVM.
The National
Organization of Rare Disorders lists this congenital defect
under rare disorders, but my doc knew what he was dealing with before
he opened my head. In my surgery report,
my preoperative diagnosis states the following… “Right
temporal intracerebral hematoma, possible venous malformation. What
are the odds of landing in an emergency room on a Tuesday night
with a neuro surgeon who knows the particulars of an extremely rare
brain disorder? That alone was more proof for the existence of God
than I’d ever need, but I got much more proof than that during
my out of bbody experience and the path that experience has set
me on ever since.
I had a full frontotemporal
craniotomy under emergency conditions (which means they cut
the whole side of my head open, peeled my scalp back, removed a
section of my skull to get in my brain where my bleeding was stopped,
the AVM removed, the pools of blood within my skull evacuated, &
a resulting hematoma also removed… (I had a massive stroke
from all the blood lodging in areas where it had no business being).
Click here if you'd like
to read the thank you letter I wrote Dr. Rydell. I also posted my
surgery report in case you would like to read the
particulars of cutting open a person's head to get in and work on
their brain...
continued, next column.
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^^^Before^^^ & ששש√After√ששש
This pic taken several weeks after surgery. I'm pissed that no one
took pix when I had loads of tubes sticking in me or when my head
was all stapled up. The staples would have been a great CD cover
for my industrial band. I kept the staples & made a morocca
with them; it sounds great!. You can hear it on the new Auditorium
album.
I don’t remember too much
from the ICU except it was freezing & that I wanted to pull
all of the tubes & needles out & go home because I knew
I couldn't afford to be there for any length of time. Plus I wanted
to get to work on writing down & sorting through all the information
I received while out of my body.
As it turns out, I would be in the ICU several
days, on a recovery floor for a week & on a rehabilitation floor
for 2 more. I remember a lot more from the rehab floor.
As I discovered that I
could begin to do things like walk, they (the hospital staff) found
out that they would have to put an alarm on my bed so that I would'nt
walk around by myself & try to fly the cuckoo's nest.
It was very hard to walk at first…
It took all my concentration. 3 books got me through this phase
- "The
Miracle of Mindfulness", The Prison Epistles of Paul, &
"Frontal
Lobes Supercharge", which reminded me that the brain is
capable of feats we are just beginning to understand.
My doctors kept reiterating how lucky I
was… That I really beat the odds just by living & that
it was incredible that I could be up walking & talking just
days after such a serious operation. I was afraid to tell them what
I saw while out of body & how those visions were partly responsible
for my progress & need to get home so that I could get "on
mission".
My skull bones fused back together quickly
& there was no need for a metal plate, so no worries at the
airport metal detector for me! My doctors opined that it was probably
because I was in such good health going in that I survived &
was recovering so quickly.. ( I have been a vegetarian since my
teens & have been a raw "Foodist" the last few years).
I completed 2 weeks of rehab therapy on the recovery floor &
met some of the most wonderful people I think I will ever meet (my
rehab nurses & doctors).
The next news was that I could be discharged
from the hospital but that with my particular brain injury (anytime
a craniotomy is performed it is considered to be a traumatic brain
injury) I would not be able to go home alone either. I was put in
a
nice assisted living facility for a couple of months while I
went through a physical, occupational & speech/cognitive rehab
program on an out-patient basis. I worked really hard to complete
this in record time. I also wanted to prove I could live on my own
again so that I could get back to my home, my computers and my reason
for being put back on this planet.
an MRI of my brain a few months after surgery
The assisted living facility or A.L.F. was quite an
experience. It was like having several sets of grandparents. I was
at first, resistant to going, but I’m so glad that I did as
I have very many precious memories that I'll always treasure &
I’m planning on going back there to volunteer as soon as I
can.
The rehab programs measured my deficits &
gave me exercises to correct for the disruptions that were occurring
in my neural pathways. It was discovered that I had left homonymous
anopsia, which means that I have no peripheral vision to the left.
My brain injuries were in the right hemisphere
which controls the left side of the body. The peripheral blindness
continues to this day, as does some fine motor coordination problems
on my left side as well as a weird, slightly numb frostbite-like
pain on my left side. I’m told that with time & some continued
therapy; these things may correct themselves as my brain continues
to heal.
I’ll update this article as I get more
“missing time” info from friends & family &
as things continue to (hopefully) heal. At this point I can’t
drive because of the peripheral blindness & am told I need to
rest as much as possible, which is difficult for an active guy like
me. The good news is that with time & therapy there is no reason
to believe that I won’t be able to return to everything I
used to do. I’ll be praying for that & I hope if you read
this you’ll say a prayer for me too. I know now that prayer
is a directive force.
Having lived through this I feel blessed
& not at all depressed or in a state of "Why Me."
Yes I have to face some debt & may be partially blind for the
rest of my life & unable to drive, but now when I wake up to
another day, I realize all that we take for granted. Now, every
day, the miracle is to walk the earth & witness creation, &
I know that even if I don't get any better, that I have what I prayed
for when I new I was near dead, which is the ability to think, write
& carry on with my
project; a website
that I hope will make a contribution towards better days for all
of us on this 3rd stone from the sun. As you can see (if you
click the link, I have been able to continue. It's months later
now (July, 2004); I'm still half blind, but hopeful. Unlike most
other people I know why I'm here and what I have to do, so I'm getting
back to work on it because we don't have much time to turn things
around on this planet (environmentally speaking). The most frightening
thing I saw during my N.D.E. was the end of all biology on earth..
I was also shown how we might avoid that & my work is now about
getting that information out of my head & sharing it with the
world. The end of life on earth or a new golden age is a choice
being made by humans. If we do not choose correctly the earth will
die of consumption. I saw it. That same entity of fear that had
me in it's grips at the point I was a "lock-in" seeks
to drive all life on earth toward a similar fate.
Here's a fun tangent:
One of my favorite bands, The Flaming Lips, has a song called "Guy
Who Got A Headache & Accidentally Saves The World"
Check it out for fun,
Then look
at my new site & see if they were perhaps being prophetic
=->
I'm a bit financially screwed by this, so if you can help out with
a donation, well, that will help me continue to donate my talents
toward what I think
could lead to a better future for all.
I've tried to take the good of what's happened to me & turn
it into greater good. My verbal abilities, which should have been
destroyed by this incident actually seem to have been improved,
so I've used that to write all the material on my
new website & author 2 books & a trilogy of feature
film screenplays. The books have to do with human & environmental
health. The screenplay "Apocalypse
Near" has to do with taking the world's environmental
issues into a new stage of healing. I believe I'm creating a new
mythology for the masses to understand the symbiotic relationship
that can exist between the microcosm of self & the macrocosm
that is our universe. This work is also part of the upload I feel
I received during that time I was out of body & adrift between
biological earth life & eternal spirit life. I can still get
in contact with that place through a
system of meditation I received while there. If you wish to
read any of this material, please contact
me.
11/06 UPDATE!
Check
out the healing method I'm deploying to rid myself
of nerve pain, defeat my epilepsy & cure my blindness. I will
post updates as I use this system.
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